Fresh Juice on Squeezin’ Lyme

*Fresh Juice on Squeezin’ Lyme will consist of post updates I will write on occasion regarding what I’m learning while battling persistent Lyme disease and other chronic illnesses.

Praise the Lord, my soul, and forget not all his benefits— who forgives all your sins and heals all your diseases, who redeems your life from the pit and crowns you with love and compassion, -Psalm 103:2-4

Having health is an incredible blessing. As someone who lives with persistent Lyme disease along with other chronic illnesses that go hand in hand, I have my good days and I have my really, really terrible ones. (In a previous blog post here I shared my backstory and my journey of motherhood battling persistent Lyme disease) My quality of life has improved in the past few months, due to some new treatments. It has been such a long time coming-twenty-seven years long, and recently I’ve had more good days than bad, which I am so very thankful for. I still have to pace myself throughout each day, but I’m able to do much more than I was. When I am feeling well, I need to remember though, not to take those precious present moments for granted, because they aren’t guaranteed.

The other day, was a stark reminder that I am still living with these insidious illnesses. Not only are Lyme disease and these other conditions complex, Lyme is especially stealthy and symptoms will hit when I least expect them. Feeling like I had the full-blown flu and bedridden the majority of the day, I could hardly stand to be in my own body. It’s days such as these, that I can’t forget how truly blessed I am when the fatigue has subsided and hasn’t sucked everything from me and my joints aren’t aching constantly, when I can smile and laugh because I am able to live somewhat, rather than just survive. These aren’t illnesses for the faint of heart. Fighting persistent Lyme disease, along with other chronic conditions requires the endurance of a warrior, but more importantly, it requires God’s strength. Lyme disease is tricky to treat and often needs a multi-faceted approach.

Trying to describe life with Lyme to others who haven’t gone through it themselves, is an extremely difficult task. Just touching the surface of this illness, it would best be described as “pure suffering and misery”. To say the very least, it can be unbearable. It’s a kind of bodily torture where thoughts arise as to whether continuing to exist with these symptoms is even possible. The fatigue and weakness is incomprehensible to those who haven’t experienced it. The I-don’t-know-if-I-can-even-crawl-out-of-bed-the-few-feet-to-the-bathroom-and-back-to-bed, kind of fatigue and weakness, could be mentioned, but is an understatement. There have been days in the past, where help was needed and it seemed like death was sitting on my doorstep waiting to devour me. And on more than one occasion, I have actually thought I was dying. Those were the times I couldn’t fathom how anyone could continue to endure that amount of agony day after day and still be alive. While there are many other symptoms, fatigue and weakness are two of the biggest I’ve fought on a daily basis for as long as I can remember, until more recently.

I thank God for the new treatment regimen that has made my life and those around me a little easier. And while I don’t ever want to experience the debilitating symptoms I’ve gone through for years with these chronic illnesses, the really awful days do help me to remember that the present moment is just that-a present from My Father. Health is easy to overlook and not think twice about, until it’s gone. It’s those days though, when my symptoms let up and I feel healthier that I can see just how rich I am. To have health, is to live, not just survive. And that is a huge gift.

So let’s remind ourselves to live wisely and cherish each moment we do have, thanking Him for the present, because we will never have those same moments again.

Be very careful, then, how you live—not as unwise but as wise, making the most of every opportunity, because the days are evil. -Ephesians 5:15-16

3 thoughts on “Fresh Juice on Squeezin’ Lyme

  1. Oh, Aimee, I don’t have words to adequately respond to all you have suffered. I am so deeply sorry. And I rejoice with you for your new treatment. Now that I know this, I will add it to my prayers. You are so cherished by the Father!

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